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LACNETS Hosts a Regional NET Patient Conference in Minneapolis

On Saturday, September 21, 2024, over 50 people living with or supporting those living with neuroendocrine cancer gathered for a Regional LACNETS Educational Event in Minneapolis, Minnesota, for an afternoon of learning and connecting.  



Our delightful patient panel shared their compelling insights and experiences living with NET. They gave their thoughtful perspectives on how they initially coped with the diagnosis, weighed decisions at various crossroads and shared important lessons learned during their journey. And everyone laughed and appreciated the practical recommendation for heated toilet seats!


Dr. Philip Boudreaux, a surgical oncologist at LSU, and Dr. Chandrikha Chandrasekharan, a medical oncologist at the University of Iowa, answered various questions from our audience. They colorfully covered topics from histotripsy to nutrition for NET.


Dr. Emil Lou, a medical oncologist for the University of Minnesota, gave an inclusive Overview of Treatments & Other Aspects of NETS & NECS and Dr. Thor Halfdanarson, a medical oncologist at the Mayo Clinic, spoke to the Sequencing of NET Treatments, including clinical trials.  


Dr. Donna D’souza, an interventional radiologist at the University of Minnesota, Patrick McGarrah, a medical oncologist at Mayo Clinic, Dr. Ajay Prakash, a medical oncologist at the University of Minnesota, joined Dr. Boudreaux, Dr. Chandrasekharan, Dr. Halfdanarson and Dr. Lou to close the conference with a well-rounded question and answer session. 


A special thank you to NANETS, who held their Regional Educational Event, for inviting us to share their conference space and expert speakers. They presented comprehensive information about neuroendocrine cancer to medical professionals. Be sure to share NANETS.net with your doctors, so they have an opportunity to learn more about the intricacies of NET.   


And we encourage you to stay connected to the local Minnesota support group, Northwood NETS.


Here are some comments we have received from attendees so far:  


“My compliments on the quality conference Saturday 09/21/2024 in Minneapolis.  I learned a lot and felt confident that my current treatment (watch and wait) is ok. I loved the humor and experiences shared by patients and doctors. Thank you to all who helped make that conference worth attending.”

 

“Thank you to everyone at LACNETS for the wonderful patient education conference in Minneapolis on Saturday.  It was the greatest! The afternoon flew by and I learned so much. It all was just excellent.” 
Everything was excellent! Highly recommend to anyone to attend an in-person patient conference.


We are grateful to our seven speakers:

  • Philip Boudreaux, MD, FACS

  • Chandrikha Chandrasekharan, MBBS

  • Donna D’souza, MD

  • Dr. Thor Halfdanerson, MD

  • Dr. Emil Lou, MD, PhD, FACP

  • Patrick McGarrah, MD

  • Ajay Prakash, MD, PhD 


And our wonderful patient panelists Rick, Jud, Dusty & Mary Beth.



Here are the presentations:

Dr. Thor Halfdanarson on Sequencing of NET Treatments 


Here are two of the LACNETS Webinars mentioned during the patient panel:




Here are additional resources referred to during the patient panel:




To find out more about upcoming in-person and virtual LACNETS Educational & Wellness Events, visit our Events Page.



 

THANKS TO OUR SPONSORS







 



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