ABOUT NET
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On average it takes 5-7 years to accurately diagnose NET.
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Neuroendocrine cancer affects men, women & children. It does not discriminate.
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NETs can be easily mistaken for IBS, gastritis, anxiety & asthma.
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NETs are more common than brain, ovarian or cervical cancer.
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Due in part to the rarity of the disease, NETs are often misdiagnosed.
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Approximately 50% of NETs have already spread to other parts of the neuroendocrine system when the diagnosis is made.
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1/3 of NET patients are diagnosed incidentally while testing for another condition.
NET CANCER DAY
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NET Cancer Day is an annual event held on the 10th of November, created by the International Neuroendocrine Cancer Alliance (INCA) to increase awareness of neuroendocrine cancers (NETs) and to provide a voice to the NET community.
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On November 10th, INCA members, including LACNETS, from around the globe, promote resources to increase awareness about this often misdiagnosed cancer.
You can join this global community to raise awareness for NETs around the world.
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On Nov 10th, download an image below and post it on your social media or share it via email.
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For more tools and resources about NET Cancer Day, visit the INCA campaign page.
FOR HEALTHCARE PROVIDERS
The North American Neuroendocrine Tumor Society (NANETS) is dedicated to educating medical professionals on the diagnosis and treatment of NET disease and supporting research and innovation in the field.
NANETS provides the following educational programs, CMEs and resources for medical providers:
Go to nanets.net/ to learn more.
The International Neuroendocrine Cancer Alliance’s mission is to be the global advocate for neuroendocrine cancer patients. INCA provides NET patient information packs in 10 languages for patients, health professionals, and anyone wanting to better understand NETs.
The Think NENs Global Educational Program for Primary Care Physicians is a free, comprehensive e-learning program that provides everything primary care physicians need to know about diagnostics, treatment, and care of patients with neuroendocrine cancer. The 1-hour main module of three videos (each 20 minutes long) provides UEMS-EACCME® credit if the enclosed exam is completed successfully. Providers can register here: https://thinknensinprimarycare.incalliance.org/
Download & print brochures to bring to your providers.
Go to incalliance.org to learn more.
The American Society of Clinical Oncology is the world's leading professional organization for physicians and oncology professionals caring for people with cancer.
ASCO provides:
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Learning opportunities for oncology professionals
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Global network of oncology expertise
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Meetings & educational opportunities, including ASCO Gastrointestinal Cancers Symposium
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Guidelines for Systemic Therapy for Tumor Control in Metastatic Well-Differentiated Gastroenteropancreatic Neuroendocrine Tumors
Go to https://asco.org/ to learn more.
LACNETS supports NET patients & caregivers. Below are some of the resources LACNETS provides: